If you have frequent fractures, Your doctor would recommend a BMD scan test.

You are not alone my friend, There are others in similar age group in the comments here.

Please use Bone Health Tracker with your BMD test report.

I haven't, My phosphate levels do come low during my blood profile tests which is done for deciding whether I can take the yearly bi-phosphate injection for Osteoporosis; I wonder whether Hypophosphatasia could be the reason.

I also have most of the signs you've pointed out, So I will get tested for Hypophosphatasia.

I cannot appreciate enough on behalf of everyone for bringing awareness to this by commenting.

I'm sorry that you have to face this. One of my goals with Bone Health Tracker is to raise awareness about all bone health diseases and to help build better treatments.

Your BMD report would be useful too, Consider using BHT.

Thank you, Please consider using Bone Health Tracker with your BMD scan test report.

Lol, I'm indeed thinking of posting to r/Neverbrokeabone as well because I need baseline data of BMD from those with healthy bones too.

No hoops, Just not collecting any Protected Health Information (PHI).

Thank you for finding it, I've fixed it.

I've been doing some resistance training for some years since I was diagnosed. Although I felt good after exercise i.e. w.r.t pain reduction it doesn't seem to help with my bone density i.e. If I don't take the bi-phosphate injection for a year; My density drops further even when I didn't change the exercise routine.

Lately, The pain from exercise itself is becoming greater than the pain from not doing it. So I have dropped couple of routines like weight lifting from my exercise, My next BMD data would probably tell how it has affected my density.

I understand your pain(literally) my friend.

There's a sense of cosmic injustice when you see that all other patients near you are twice your age.

I suspect that Osteoporosis, Osteopenia currently get only end-of-life treatment as only elderly population get it and people like us are rare.

But, Majority of world population is going to be old by 2050 so its in best interest for everyone to start investing in bone health research right now.

Anyways, Some of my bones are in Osteopenia category as well and our main goal should be to not let it become Osteoporosis as well. Please use Bone Health Tracker with your scan report and submit data for research.

Get in touch with me and I'll help you with it.

Thank you, One of the main reasons I built this is to reach to people like yourself.

1. When I asked my doc, Why am I the youngest person among his patients who are on average > 60 years, Why I haven't seen any real progress in my bone health even after years of treatment and shouldn't we find why I'm suffering Osteoporosis at an relatively young age?

His answer was that the BMD data we compare with doesn't include all ethnicities, races and those with pre-existing diseases.

I'm south Indian and I suffer from Achondroplasia. There are huge genetic variations within India, BMD reports compare our data to generalized Asian data.

So, One of my goals in Bone Health Tracker is to help build proper BMD data which accommodates all ethnicities, races and also assess the role of pre-existing diseases for bone health.

2. My doc compares previous reports each year to see the progress of the treatment manually using the figures from my Dexa scan report which as you know are small decimal numbers.

A minor mistake in manually comparing the data can lead to wrong outcome. A typical doctor here sees hundreds of patients per day. A typical patient has no idea about understanding this data and has to completely rely on the doctor to interpret.

With Bone Health Tracker now I can clearly see the progress of the treatment with each new report, There's no manual fiddling with numbers anymore. This was something I needed myself for years now.

No, I just get the same treatment as any other elderly person gets now and they are just temporary measure to be taken every year. So we suffer the consequences of extremely brittle bones.

I'm 36, Every other patient with my doc is above 60 years old. I believe since Osteoporosis affects only the elderly usually there's not much investment in this area.

When I was 32 years of age I was told that my bones were like that of an 80 year old due to a health disorder called Osteoporosis.

Osteoporosis can make our bones fragile and likely to break.

1 in 3 women over the age of 50 years and 1 in 5 men will experience osteoporotic fractures in their lifetime. It is likely that your parents and grand parents are already suffering from Osteoporosis.

Osteoporosis is identified using a Bone Mineral Density(BMD) scan test which gives scores for our bone density and is compared with the known scores from the healthy individuals of same age.

I was told that these known scores does not include all races, ethinicities and are generally unreliable for those with pre-existing diseases. This makes it difficult for providing proper healthcare, Even more so for outliers like me.

I'm attempting to change that with Bone Health Tracker.

Bone Health Tracker classifies the Bone Mineral Density(BMD) scan test report to display the reports with visualizations to better understand the bone health and to monitor the progress of bone health treatments .

1. Healthcare providers currently have to manually compare the BMD reports of their patients every year to analyze the treatments, With Bone Health Tracker's dynamic chart feature they can now do it automatically and even patients can track the progress of their treatments.

2. Skeleton visualization helps to easily understand which bones are affected by Osteoporosis, Osteopenia even by those without prior medical training.

3. BMD scan test reports without any personal information can be submitted for the research of bone health and treatments for bone health diseases.

No Protected Health Information (“PHI”) is collected during the entire function of Bone Health Tracker as only assessment section of the BMD scan test report is needed.

If you (or) a family member has taken a BMD test, Consider using Bone Health Tracker to monitor the progress of your treatment and submitting the non-personal data for research. If you are researcher dealing with bone health, or know anyone who would be interested in the data gathered by the Bone Health Tracker and help improve it; Please get in touch.

Thank you for reading.