Just skin. Tried meds, they’re a no-go so far.

I used to LOVE to swim! Now it hurts, which sucks. The pain level fluctuates, sometimes it’s quite bad, other times there’s no pain at all, just some red spots and non-it by hives. It’s wack. Sometimes they last 40 minutes, sometimes 5.

Hmm, I don’t know. I haven’t noticed any changes other than while on meds. I am part of a few Facebook groups with people of all ages having it, though. And I’m not sure about the milk thing.

I do use a washcloth on non-shower days, but it really doesn’t get me quite as clean.

Shower and suffer.

I did try Zyrtec, and famotodine, and Allegra. We were seeing progress, until we didn’t anymore and it started going back to how it was, so I decided to just face the reaction. I have heard there’s some form of shot, I think my mom is looking into that.

No clue. I have tried to get into medical trials, but they were all either full (surprisingly) or didn’t want me because I have other pre-existing conditions that may interfere

Name it, I’ve tried it. City water, well water, filtered water, distilled, ocean, lake, river, pool, another type of pool, hot tub, etc. It all caused the same reaction.

I dunno, honestly. My body is wack, I have rarer medical conditions than this haha

Have tried. Have failed. We started with low dose of Allegra, then bumped that up and started Zyrtec and something else (famotodine i think) and eventually they stopped working.

Many times!! I am the queen of “I’ve never seen this before” due to multiple rare conditions (such as a pre-cancerous subungual melanoma on my middle finger, which is typically found in black men, 50+, on a thumb or big toe) but diagnosing was tough. I had to sit for around an hour at Children’s Hospital telling them that “no, temperature does not change it. no, it’s not chlorine” because it’s so rare that they thought it was everything else!

I think humidity would only factor in if it made me sweat more, although I have noticed worse reactions in the summer.

No clue. I just know when I touch water, my skin isn’t happy.

Hmmm, good question. I remember when I was 9 or 10 complaining about being itchy after swimming in the ocean, but at that point we thought it was a hormonal/puberty thing (as my mom had a short phase of that type of thing around that age) and we didn’t go to a doctor until I was around 12-13 and I walked out of the shower one day and realized I was covered in red splotches and hives. Then, after a few different dermatology/allergist visits, I was formally diagnosed.

I can! Sometimes there’s little hives on the top of my feet (and my legs tend to be the itchiest, but there’s usually no hives???) It’s very fun. And honestly, I’m confused too.

I stay inside if possible, and I always have an umbrella. Of course, being wet at some point is unavoidable, so I just take the reaction and bear it lol.

Shower and suffer. I don’t trade in hygiene for comfort. I try to shower every other day though, to avoid bad reactions, but in the summer it’s every day. Washing my hair adds time to showers and the dripping afterwards adds time to drying off, so I try to only wash my hair two times a week (luckily my hair is naturally not super oily.)

I don’t think I’ve noticed that, no. I think that perhaps my skin would be a little pink at most, but that likely amounts to my skin just being sensitive.