Yup!

I guess I try to put a fake name on it next monday and see if the rules change again!

I got about 200 different doctors and nurses who sent me messages saying it was perfect for what they would want from patients.

I'm just confused about why the mods keep deleting anything I post.

yes, would love any advice. I can't figure out why anything I post gets targeted. Last time I posted something that was pulled in 2015 there wasn't the rule on "Personal data" so I didn't see that was new.

With the uptick in attacks against disabled, LGBT and the chronically ill, it makes me really paranoid around safety issues in subs where health information is suppressed.

I see so many people post their weightless journeys, phone call data and all sort of other things here, but these straight why guys usually have some sort of understanding of the sub that is missing from the rules on the side bar.

I got asked about an app. That's not really my thing. That said, the simple powerpoint template seems to help folks.

Unfortunately the mods pulled this off the sub again. Not sure which rule I broke this time, but when I mention mental health, chronic illness or LGBT, things disappear here.

If I find out, I'll let you know, I appreciate your feedback.

Thank you, the mods pulled it again. I think the mental health / chronic illness / LGBT stuff is too much for "data is beautiful" really makes me sad. I've had this happen over the years on this particular sub.

Well the mods just pulled it. It seems like when ever I post anything that deals with disability, mental illness or being gay it gets pulled. Very odd.

Looks like my post has been pulled down again.

It's really strange. This keeps happening.
As someone who has struggled with disabilities, who followed the rules and identifies as non-binary, it seems strange that my posts are targeted.

It's so wild. My life before with drugs, booze, cigarettes and all sorts of associated behaviors doesn't even seem real.

I remember it, but almost as a third part participant.

I don't even understand how I got there or how I got out, it just all happened one day at a time.

Yeah it's easier to buy a gun than have a beer here in the US.

I have seen so many attempts to make it easier for people over the years, but they all fail. Reading a lot of the comments helps me understand there is just a lot of stigma people have over their health information / bodies and the repercussions that come from having that information sharable.

Do you think we will see something in the next 30 years? I keep thinking that the phone operating systems will make it a reality at some point. Seeing all my lab work on my phone in the health section blows my mind. I've had to manually manage all that for decades.

It was amazingly therapeutic. It allowed me to see my life not as a bunch of trauma (it was) but that maybe I was a survivor.
Doctors really react quickly to this, and usually take me seriously very fast.

It's seriously in my book that is now nearly five years old. What I couldn't get over was how many people didn't have a way to communicate with their doctors / health teams.

This chart has saved me hundreds of hours in talking to professionals and I think it's important for people who might have chronic illnesses, mental health challenges or other larger histories that need to be communicated quickly.

I actually modified a version for a new dentist I'm seeing recently!

I can share the link to the template, but I'm a mod on another sub and dont' want to break another rule (e.g. I didn't read closely about Monday personal data)

LOL! I bet that would seem shocking.

I wrote a book in 2018 with all the same information and now give that story at keynotes around the world.

I bet it looks odd, but it's nothing that is not actually public for me, my doctors and my story.

• OC INFORMATION
• Tools:
  • Powerpoint
• Data sources:
  • Doctors notes, medical files.

I had posted this last week but it was removed because of "Rule 9".

This blew up when a lot of disabled and chronically ill people online said they wanted a copy after I shared it.

Thank you to the people on this sub who gave me corrections of spelling and other errors to make it cleaner.

I created this when I had to see different doctors so I would not have to explain myself each time. It's greatly helped me cut through a lot of small talk with all sorts of professionals over the years.

EDIT: I'm not sure if I'm allowed to post the template on the sub, I will if it won't get the post removed again or you can contact me. It's really easy to edit and the entire report is about eight pages.